I have a favor. It’s a small favor, but it can pay huge rewards. If you are a Facebook member, I am asking for you to become a fan of Chase Community Giving here. Chase is giving one charity $1 million to pursue a Big Idea. You can learn more about this project here.
Once you become a fan of Chase Community Giving, you can cast your vote for the charity you would like to see funded by Chase. I humbly ask that you consider voting for Ehlers Danlos Syndrome Network Cares. Heard of EDS? Most have not. The EDS Network Cares writes,
“EDS is a life-threatening, painful, crippling genetic disorder caused by faulty collagen. It weakens the connective tissue causing fragile skin, joints, ligaments, organs, and blood vessels. EDS is misunderstood, grossly misdiagnosed, and some 90% never receive a proper diagnosis in their lifetime. There is no funding for research. There are no treatments. There is no cure. Today, we are at the threshold of promising research that can change all this and offer those who suffer, HOPE. It’s estimated that 1,358,640 people are affected worldwide, and thousands die. Sadly, many are diagnosed at autopsy after catastrophic internal ruptures. Yearly, 30,000 children are born with bleak futures as they struggle with lifelong consequences due to EDS. Our HOPE is to continue to fund research, increase education/awareness, find treatment options, and save/improve lives. Help us find that cure.”
You can read more about EDS and their Big Idea here.
Why is this charity so important to me? Because, I lost a best friend in 1998 to Vascular EDS. His name was Josh Doss. Few have ever been as passionate about life as Josh. He was a lover of Christ and a lover of people. His son, Karsten, was only seven weeks old at the time of Josh’s death. In the few short days after Josh died, his mother, Debbie learned that Karsten had the same disease.
And, there is no cure.
Please, watch this video as a tribute to Josh and Karsten. Then, please cast your vote for Ehlers Danlos Syndrome Network Cares so Karsten, and so many others like him, can have a chance at long life. Vote for EDS. Vote for hope.
Thank you, thank you, thank you!